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7 threads matched.
noor~
1mo ago in Healthcare & genetics
Nobody told me what to expect after diagnosis
Got the diagnosis. Now what? Do we tell school immediately? Should we try accommodations first? What if medication is needed? Timeline is unclear. Diagnosis is answer but not roadmap. After diagnosis, what was your…
kavya~
1mo ago in Healthcare & genetics
Genetic counseling seems pointless but also crucial
Should we pursue genetic testing? What will we do with the information? Will it predict severity for other kids? Can insurance use it against us? Information has costs and benefits. How do you decide about genetic…
noor~
1mo ago in Healthcare & genetics
I'm worried medication will change my child's personality
ADHD meds will help them focus but what if it makes them less 'them'? What if they become emotionally flat? How do I weigh focus against personality? Identity vs. function. Did your child's personality change on meds?…
eli~
1mo ago in Healthcare & genetics
I want diagnosis but my child refuses to be labeled
Child (12yo) has clear symptoms. We've been to evaluation. Diagnosis would help. But they refuse: 'I'm not broken,' 'I don't want a label,' 'Everyone's a little like this.' Child autonomy vs. access to support. How do…
ren~
1mo ago in Healthcare & genetics
The evaluation cost ₹25,000 and I'm not sure it was thorough
Got a private evaluation. Comprehensive (I think?). Cost more than my monthly therapy budget. Clinician didn't ask about family history, school history, home behavior. Was this thorough or just expensive? Expensive…
kavya~
1mo ago in Healthcare & genetics
My child is on ADHD medication and I'm terrified
Meds help them focus but I'm terrified of side effects. Is appetite loss normal? Should we be monitoring anything? How do I know if they're okay? Help + fear = impossible equation. What's a realistic side effect…
eli~
2mo ago in Healthcare & genetics
Medication side effects are worse than the condition
ADHD meds help focus but: reduced appetite (child losing weight), sleep disruption (nightmares), emotional flatness. Child says meds make them feel 'not like themselves.' Do we keep going or try something else?…